big picture:
HAE
challenges
can come in
Waves
The possibility of an attack is a major worry…but not the only one. The bigger picture reveals ongoing challenges experienced by people like you, living with hereditary angioedema (HAE).
The possibility of an attack is a major worry…but not the only one. The bigger picture reveals ongoing challenges experienced by people like you, living with hereditary angioedema (HAE).
A Complex Collage: the Burdens of HAE
Living with HAE goes far deeper than managing attacks. It means managing treatments, healthcare access, impacts on your career, and much more. Insights from recent research include:
Across multiple surveys, approximately 80% of people on preventive treatment still reported attacks within the last year.1,2*†
Logistical issues such as insurance coordination were a major concern for 57% of respondents1*
Sixty-three percent of respondents said HAE has impacted their career choices3‡
2025 survey of 100 adults living with HAE.
2021 survey of physicians reporting data on 384 people living with HAE.
2007 survey of 457 people living with HAE.
Explore Impact, Understand Attacks, and Find Resources
Living With HAE
Review mental, professional, and personal impacts of HAE.
Understanding HAE
Get a clear explanation of the science behind HAE.
HAE Advocacy & Support
Become your own best advocate on your HAE journey.
References:
- Busse P, Wilson K, Farkas H, et al. Rethinking the management of hereditary angioedema. Allergy Asthma Proc. 2026;47(2):92-101. doi:10.2500/aap.2026.47.260004
- Anderson J, Soteres D, Tachdjian R, et al. Real-world outcomes in patients with hereditary angioedema prescribed lanadelumab versus other prophylaxis. Allergy Asthma Proc. 2024;45(6):426-433. doi:10.2500/aap.2024.45.240046
- Lumry WR, Castaldo AJ, Vernon MK, et al. The humanistic burden of hereditary angioedema: Impact on health-related quality of life, productivity, and depression. Allergy Asthma Proc. 2010;31(5):407. doi:10.2500/aap.2010.31.3394
This information is for educational purposes only and is not intended to constitute medical advice. For all healthcare decisions, talk with your healthcare team.